In 2012, Patricia's son Redd was born, with a surprise that would forever shape their lives. Redd came into the world with a head full of white hair, which initially seemed like a curious anomaly. However, as time went on, Patricia and her husband Dale noticed other unique characteristics in their son, leading them on an unexpected journey of discovery. The subsequent diagnosis of Oculocutaneous Albinism Type one (OCA1) not only brought challenges but also sparked a determination within the family to raise awareness and promote acceptance for those with albinism.
Discovering Albinism:
As Redd's eyes would move side to side, Patricia and Dale sought answers. A Google search revealed a startling revelation: this eye movement was commonly associated with albinism. Medical consultations confirmed their suspicions, identifying Redd with OCA1, a rare condition affecting 1 in 17,000 individuals globally. This diagnosis shed light on the pale skin, white hair, and tracking eyes that Redd possessed.
The Journey of Understanding:
Patricia reflected on the initial excitement at the hospital when Redd was born, with his white hair and blue eyes captivating everyone's attention. At that time, the family didn't think much of it, as Patricia, Dale, and their firstborn son Gage all had blonde hair. However, as Redd's hair sparkled in the sunlight and his eyes shone brilliantly blue, Patricia began to realize the uniqueness of her son's appearance.
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